Happy New Year 2024!
Hi, my name is John. And I have CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). When you have CIDP you must often figure out different pathways to accomplish your goals. And sometimes you have to change those goals -- and pathways -- a lot or a little. Maybe even daily.
I used to love playing the piano, but sitting too long is literally a pain in the rump. Sorry for being so blunt. But it's not comfortable to sit for a long time on a hard seat. Especially when my tangled nerves and stiff joint are constantly shouting at each other.
It's so relaxing to play old favorites once in a while. Especially Christmas classics during that special season. But how could I reach this goal of having a little extra comfort and support? What options did I have? And then it hit me.
I could try using an office chair instead of a low piano bench. Something with far more padding and arms, too. And the height was adjustable too. Such an obvious solution and yet it had never occurred to me before.
So that's what I tried. And it worked.
But I was having trouble pressing the foot pedals because of weakness in my right ankle and foot. So I tried my left (still stronger) foot and it worked -- at least for a while.
And playing the piano for "a while" -- even a short while -- is better than not playing at all. A little something is a whole lot better than a whole lotta nothing!
I hope today is a day of solutions, hope and fun for you. And may 2024 be a time of new options, strength, and healing. Thanks for listening.
John
P.S. To follow my Life with Neuropathy blog, visit lifewithneuropathy.blogspot.com. Find the three lines next to the search button in the upper right hand corner and click "Follow." You'll be notified of my future blogs. Would love to have you on my core team of readers!
P.P.S. For further thoughts visit Let's Talk about Mobility, Let's Talk about Speed, Let's Talk about Changes, or Let's Talk about Giving Thanks. You can also read about Losing Your Doctor, Using a Handicap Placard, Walker Envy, Saying "Owww" when it hurts, dealing with Pain, or the Humor of finding out your personal walker was a star on the TV show Monk! Finally, if you ever find yourself dropping things like I do, please feel read this.
P.P.P.S. I still drop stuff each and every day! Sometimes two things at a time! Or more...
Thanks, James Zwadlo, for the perfect picture. Photo by https://unsplash.com/@james-zwadlo.
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