Life with Neuropathy

  This Little Toilet of Mine:  Definitely Isn't ADA Compliant!   Hi, my name is John and I ha ve severe Idiopathic Peripheral Neuropathy (IDP).  So I'm used to pain. I don't like it one bit but I live with it. It makes me very tired. Just like your pain probably does. Please read here to learn more about my  worsening symptoms.  It can even hurt to  stand . Allow me to share a little story with you... 'Twas the night before the wedding and all through the Air B-n-B, 10 people split five bedrooms, and two bathrooms, not three... Not sure how many of you have tried an Air B-n-B and been disappointed. The people who are brave enough to open their home (or one of their many homes) really don't know who they're getting when they provide the secret code to a stranger. Of course, those who are renting a place for the night don't know what's in store for them until they open that front door.  Things can go very well or very poorly. From my very minimal experienc

Hi, my name is John. A nd I have CIDP (Chronic Inflammatory Demyelinating Polyneuropathy ).  How did you feel when you got your Handicap Sticker for your license plate? Or maybe you chose a placard for your rear-view mirror. I got the latter because you can move it easily from vehicle to vehicle.  Honestly, I never thought the day would come.  Although I do remember when I was initially diagnosed with "peripheral neuopathy" -- the idiopathic kind. After a difficult nerve conduction test I was given the terrible news. "You'll just get worse and worse until you need a cane, a walker, and eventually a wheelchair... And there's nothing you can do to prevent it."   No encouragement. No hope. That was a very dark day.  But then I found a neurologist who confirmed after a spinal tap that I had CIDP. And  I learned that there were some options. Which is good. Full disclosure: I'm still waiting to try some of those options but I least I have a sparkle of hope tha