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Showing posts with the label talk about pain

Life with Neuropathy: Let's Talk about Resolutions

Hi, my name is John. A nd I have CIDP (Chronic Inflammatory Demyelinating Polyneuropathy ). Thanks for reading these articles about my journey with neuropathy. You are an encouragement me to me.  Since I started writing this blog in September 2023 I've been honored to have over 5000 visitors come to the site. If you like what you read, please follow this blog and you'll be notified first when a new article is posted.  Resolutions can help push us to make changes and improvements. However, your personal list doesn't have to be anything formal. Each and every morning we have a new opportunity to ask more questions and try to find more answers to the health issues we're facing. And to stand up for ourselves as patients who deserve and need competent care.  CIDP, peripheral neuropathy and related afflictions are cruel diseases that exhaust and overwhelm you as a person. They wear out your body through indescribable, sporadic and extremely variable pain and discomfort.  And

Life with Neuropathy: Let Me Introduce Myself

Hi, my name is John. Originally diagnosed with idopathic peripheral neuropathy, I have finally been confirmed as having CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). I'm just over 60, a husband, father of 8 children and grandfather to 4. I love reading and writing and playing cribbage. I also believe I'm far too young to be dealing with the pain of neuropathy -- and yet here I am. It's part of me now.  It has changed the way that I walk, sit, stand, sleep, move and think. And much more. Getting from one place to another has become an enormous challenged. To find out more visit Let's Talk about Mobility .  I work remotely in a home office and am very thankful that I have a job, a support system, a place to live. Times are hard for us all right now. And when you add in neuropathy or any other health concern, the stress can grow. Become overwhelming. I've felt that anxiety rise at times especially not knowing what's in store for me in the next few weeks