Life with Neuropathy

Welcome to Life with Neuropathy.  Hi, my name is John. A nd I have IPN (Idiopathic Peripheral Neuropathy ).   Today let's talk about pain. Before my diagnosis of neuropathy I had various experiences with pain. Lots of dental work, a broken arm, the occassional headache, and constant foot pain.  I could never find comfortable shoes so preferred to not wear any. Especially dress shoes.  But the nerve pain that comes with neuropathy is different.  Very different. It's not something you can understand until you have to deal with it yourself.  Through the years I've seen family and friends deal with various medical issues. I saw my father struggle with intense head pain and neurological imbalances. I watched my wife go through labor and childbirth. Talk about real, intense pain. I wanted to help but could only be there for her -- listen to her. There was nothing I could do to stop the hurt she was experiencing.  Despite the best efforts at empathy, oft...

Hi, my name is John and I have peripheral neuropathy. Sometimes I have difficulty separating my physical pain from the verbal expression of that pain. That means that sounds are triggered by my constant discomfort.  When I hurt, I say "Owww!" It's the way things work for me.  The "Owww!" serves as a placeholder for other things I might want to vocalize. I guess if I tried I could stay silent and avoid these minor verbal outbursts. And sometimes I do. Many times.  Or I might say "Owww!" under my breath.  When I'm completely alone at home, I often scream "Owww!" at the top of my lungs. Maybe scream some other things. Give voice to the emotions that are tied tightly to the knife-stabbing pains tearing through my muscles and joints. Sometimes I get tired of hiding the extent of the anguish that is part of my daily neuoropathy experience.  Read more about more neuropathy journey at Let Me Introduce Myself .  I believe it's OK to acknowled...

Life With Neuropathy:  A Little Humor, Very Little Hi, my name is John and I ha ve severe idiopathic peripheral neuropathy.  So I'm used to using a walker. I don't like it but I live with it. Read more about  worsening symptoms.  Here are also a few thoughts about standing tall during tough times.  Today let's talk about humor. One of the ways that I've always survived the daily grind (even before being diagnosed with neuropathy) was looking at the world through a very strange and crooked lens. To be honest, sometimes (OK, lots of times) I was the only one laughing, but as my wife likes to say, "You're definitely able to amuse yourself."  And that's a gift, right?  Plus it's true. I see things in weird ways and sometimes stuff just makes me laugh. No explanation necessary. How about you? What's your general outlook on life? Half-full, half-empty -- or no glass at all? When things got so bad for me that I needed to use a walker, a dear friend ...