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Showing posts with the label sadness

Life with Neuropathy: Let's Talk about the Magic of Music

Are there certain songs that always touch you? I mean always. No matter what you're going through is there some special music that is guaranteed to move and delight your soul? Certain tunes that lift you up when you're feeling low.  Maybe even make you weep.  For me, listening to the Carpenters touches something very deep inside me. Karen Carpenter's voice makes me think about the insistent search for true love and the pain of loss. Her music is about constant hopefulness and frequent sadness, very much like living with a chronic medical condition.   "I Know I Need to Be in Love" and "Rainy Days and Mondays" filled me with beautiful dreams for the future with my "One True Love." Someday. The girl of my dreams, who I hadn't yet met.  I wanted to find the one person who was willing to "Love Me for What I Am," for simply being me. And I knew that "I Won't Last a Day Without You" was absolutely accurate when I, as a goo

Life with Neuropathy: Let Me Introduce Myself

Hi, my name is John. Originally diagnosed with idopathic peripheral neuropathy, I have finally been confirmed as having CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). I'm just over 60, a husband, father of 8 children and grandfather to 4. I love reading and writing and playing cribbage. I also believe I'm far too young to be dealing with the pain of neuropathy -- and yet here I am. It's part of me now.  It has changed the way that I walk, sit, stand, sleep, move and think. And much more. Getting from one place to another has become an enormous challenged. To find out more visit Let's Talk about Mobility .  I work remotely in a home office and am very thankful that I have a job, a support system, a place to live. Times are hard for us all right now. And when you add in neuropathy or any other health concern, the stress can grow. Become overwhelming. I've felt that anxiety rise at times especially not knowing what's in store for me in the next few weeks